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Tag: medical challenges

A Glimpse of ESES Into Adulthood

A family's story about coping with ESES epilepsy...Landau Kleffner Syndrome.

A quick, but exciting post for my fellow Epilepsy moms and curious friends and bystanders!  One of my hopes in blogging is that our journey with my son’s rare epilepsy might provide insight for another family, someday. There is still so… Continue Reading…


Shane Update 10/10/18

RESULTS are in.  Shane’s neurologist office called and said his EEG changes were NEGLIGIBLE. IV Methylprednisolone (steroid) is the 8th medical treatment we have tried and the “gold standard” according to the doctor.   7 failed med, looking like 8…… Continue Reading…


Unwanted Joy

Unwanted Joy

How God fixed my faulty view on special needs. The nerve-racking but beautiful part of maturity is we are always growing, changing, always evolving in our thoughts and understanding of the world around us. I now know God gave me… Continue Reading…


Operation Sibling Love

What happens when one child falls behind? Moms of multiples:  Do you ever worry about your typical kiddos “outgrowing” your special-need child’s play or social skills… and wonder if there are ways to help them stay bonded, weathering their differences… Continue Reading…